I have made a few pieces for Silly Bears this year (which were promised last year), but as the pain continues I am becoming increasingly concerned that trying to "power through" the pain may cause irreversable damage. I cancelled my place in the Teddies Worldwide online show in March, and I have decided I must cancel my trip to the Quinlan Artist Doll and Teddy Bear Weekend. This makes me incredibly sad. I am not saying that I'm not going to make any bears for now..I will when I can, but I don't think I can commit to any shows until I have some idea of what's going on and a treatment plan.
Here is a little more detail about my "health issues" if you want to read it. Skip the next paragraph if you find it to be too much information. I hate feeling like a complainer--I know there are folks who have a lot more challenging things to deal with, but this has been quite depressing for me, particularly since I don't know if or when it will get better.
Basically, I have been
experiencing a variety of pain symptoms in my pelvis, lower back, tailbone, and
legs, which get worse with sitting, standing, and heavy activity. Currently, sitting
is the worst. I can stand and work for a little while on some days, but on others standing long enough to shower and dry my hair is about all I can do before I must lie down for a bit. Sitting is immediately
uncomfortable, and it’s painful after about 15 minutes. I've had ultrasounds, blood work, Doppler scans of my veins and arteries in my legs (checking for blood clots) CT scan of pelvis/abdomen with "normal" results. I came very close to canceling my trip to the UK last November. It was mostly a lovely trip, but the all day traveling days (there were four) were difficult, and I would really like to go again when I am well. Initially, I had noticed that the
pain was worse with my periods, and as my cycle began to change those became
much heavier and much, much longer (one was 10 weeks--landing me in the ER for
a blood transfusion!) This, along with the pelvic pain, led my gynecologist to
suggest a hysterectomy (I had a prolapsed uterus, which she suspected was the cause of my symptoms.) I had this in December and the recovery was longer than I
thought--nearly two months, and while I guess I am recovered from the surgery
now...I am still symptomatic. The general heaviness and lower back pain have decreased only very slightly, and of course no more bleeding, but most of the pain remains,
new symptoms have occurred, and the sitting pain is worse than before. I've
been doing my own research online and I have run across a few things which fit
with my symptoms, I just need to find the right doctors who will solve the
puzzle, and help to set me on the right road to healing. Currently, I am trying
an anti-inflammatory diet, walking as much as I can (with standing and sitting
limited this is about all I can do) I'm in pelvic floor physical therapy (who knew
there was such a thing?!), and I'm trying to find someone who will diagnose and
treat--or at least definitively cross off the list of suspects--- Pelvic Congestion Syndrome (PCS), Pudendal Neuralsia (PN), Pelvic Floor Dysfunction (PFD), or whatever is causing my CPP (chronic pelvic pain) . I am
trying to stay positive and proactive about things. Some days I do better than
others with this.
Today was not one of my better days, but I want to end this post on a positive note so I'm reposting a video I posted on Facebook a little while back.Rachel Platten's "Fight Song" has obviously resonated with a lot of people, given its constant radio play. I am one of them. When I actually listened to the words, I mentally adopted it as my theme song for this year. Last year was an amazing year for me in so many ways, particularly with my bear business. But even as I chose to leave my teaching job and focus fully on my bears and dolls, even as I enjoyed being recognized as "Teddy Bear Artist of the Year" and traveled to England and Scotland for the first time to share my work, I was struggling quietly with daily pain. I still am. My health issues do not appear to be life threatening, but they are depressing and decidedly "quality of life" threatening. While my end of the year surgery helped with some issues, the pain continues--for now. However, I am hopeful and determined that 2016 will be my Year of Good Health!
Fight Song is a good
theme for the year, but Amazing Grace is one for life! The combination is
beautiful, and the wonderful images of Scotland remind me of one of the highest
points of my year last year!
Note: This piece is
instrumental. If you don't know the words to either song you can look them up
on Google
10 comments:
I am sorry, Tami. I knew you had health issues but didn't know what they entailed until this post. Chronic pain is so difficult to cope with. I hope you can get some answers - I definitely think the worst is not knowing or understanding what is going on with your body.
Hugs,
Brenda
I hope you will find answers and the pain will go away!!!
May God bless you.
I hope someone reads this and has insight for you, Tami. You know I am here for you but I feel helpless as a friend. Blessings.
Stay strong, Tami. I'm sorry you are still dealing with this. If you feel like getting out some time, let me know and we can do coffee or lunch! Connie
So sorry to hear of your troubles Tami. I hope you will gather strength in time to resume your bear making - the world is brighter place because of your beautiful work! Wishing you strength and happinness. Lots of love, Paula xxx
I sympathize completely...as I suffer from similar issues...have you ruled out endometriosis?
I hope you feel better soon. I will keep you in my prayers.
Hi, Tami. Wow, I'm really very sorry to hear of your pain issues. While I can't physically feel your agony, I know a lot about severe, chronic pain. I will be having my 4th surgery in 4 years on May 7th. I see you've had a myriad of tests done to solve the problem, which seems to be related to your pelvic area, but have you had an MRI of your lumbar spine? Severe spinal stenosis can cause excruciating pain in the areas you describe, and because of the intense impingement of the nerves in the spinal canal, the pain moves up and down the legs. Sitting is very uncomfortable, also. If you haven't already explored that possibility, you might ask your docs if it might be worth investigating. Just another thought. You have my sincere empathy.
Warm hugs to you. Sue Ann
Oh Tami, I am sorry to read this. It is good you keep searching for answers. I hope that they will find one soon. I will miss you this year at the show. It is always nice to visit with you and to see you beautiful bears. I will be keeping you in my thoughts.
I am so sorry to hear that you are having health issues. I hope that they will be able to be resolved.
Post a Comment